Professional Tools and Resources

Pediatric Care Online: Spina Bifida: Quick access to multiple resources, all in one integrated online library and, for current clinical information needed at the point-of-care. Subscription Required.

AAP News Article: How primary care physicians can improve health, well-being of patients with spina bifida

Spina Bifida Health Care Transition (SB HCT) ECHO

A Spina Bifida Health Care Transition (SB HCT) ECHO was held from February – May 2024. The ECHO covered a variety of topics related to SB HCT. The didactic portions of these videos are available to view. 

Note: None of the presenters had any conflicts of interest with the material presented. 

This project is funded through a cooperative agreement (#5NU38OT000282) between the American Academy of Pediatrics and the Centers for Disease Control and Prevention’s National Center on Birth Defects and Developmental Disabilities.

Care coordination for youth and young adults with spina bifida in healthcare transition

Effective care coordination is critical to a successful transition of care for youth and young adults with spina bifida. These illustrative guides serve to reinforce the value added to having a care coordination team to support youth and young adults with spina bifida as they transition from pediatric to adult focused healthcare, while highlighting the unique needs of patients with spina bifida. It also helps pediatricians and other healthcare professionals in supporting youth and young adults through the healthcare transition process. Healthcare professionals are encouraged to utilize these illustrative guides in clinical settings.

The graphics highlight findings from a learning collaborative that focused on improving transition coordination for patients with spina bifida, consistent with the 2018 AAP/AAFP/ACP Clinical Report on Health Care Transitions and Got Transitions Six Core Elements.