Spina Bifida is the most commonly occurring complex congenital birth defect. Early identification and intervention may help individuals with spina bifida get the services they need to lead full lives. Below is a collection of information, research and resources regarding spina bifida.

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Spina Bifida Overview

Spina bifida is a type of neural tube defect that occurs when the spinal bones fail to close properly during early formation and is the most commonly occurring complex congenital birth defect. It is essential for pediatricians to be knowledgeable about the impact of spina bifida on all the body systems, as well as the medical issues and psychosocial factors associated with spina bifida. Although spina bifida has no cure, early identification and intervention may help individuals with spina bifida get the services they need to lead full lives.

Policy Statements and Clinical Reports

Spina Bifida Healthcare Transition Toolkit

The Spina Bifida Healthcare Transition Toolkit provides information and resources to support youth and young adults with spina bifida transition from pediatric to adult healthcare. 

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Resources