Connecting your Needs Assessment with the Blueprint for Change: Family and Child Well-Being and Quality of Life

The following questions can help Title V CYSHCN programs approach their needs assessment process in alignment with The Blueprint for Change Family and Child Well-Being and Quality of Life principles.

For questions that align with other critical areas of the Blueprint, see Connecting your Needs Assessment with the Blueprint for Change.

Principle 1

Families, regardless of circumstance, can access high quality, affordable, community-based services that support the medical, behavioral, social and emotional well-being of the child or youth and whole family. (Principles and associated strategies are described in Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families.)

Are families of CYSHCN in our state/jurisdiction equal partners in developing services and supports designed for their benefit?

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓		✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓

Do service sectors in our state/jurisdiction promote and support flourishing, enhanced self-management, and peer-to-peer social connections and support for CYSHCN and their families, including but not limited to a sense of self-worth, purpose, and fulfill

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓

Are training programs for professionals serving CYSHCN and their families in our state/jurisdiction emphasizing child and life course development, and family and child well-being and quality of life?

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓	✓

National Performance Measure
Medical Home	Transition	Bullying
	✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓

Do service providers and professionals in our state/jurisdiction have the tools and training they need to practice culturally responsive, family-centered, trauma-informed care for CYSHCN and their families?

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓

National Performance Measure
Medical Home	Transition	Bullying
✓		✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓

Principle 2

Health systems place value on the measurement and use of both child and family well-being and quality-of-life outcomes and health outcomes.

Do health systems in our state/jurisdiction collect data on child and family well-being and quality of life, including but not limited to protective factors, social connection, family stress, and stability?

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓

Are data collection standards in place in our state/jurisdiction to improve the reliability and usability of quality-of-life and well-being measures?

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓

Do risk and eligibility assessments for CYSHCN in our state/jurisdiction include family and child well-being and quality-of-life measures?

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓

Do shared plans of care include medical, social, functional, and financial goals; and are those shared plans of care jointly developed and implemented with CYSHCN and their families?

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓

National Performance Measure
Medical Home	Transition	Bullying
✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓

Do health systems in our state/jurisdiction evaluate and link payment models to quality of life for all children and youth?

Area of Title V Needs Assessment
MCH Population Health and Wellbeing	Title V Program Capacity	Title V Program Partnerships, Collaboration and Coordination
✓

National Performance Measure
Medical Home	Transition	Bullying
✓

Critical Area of Blueprint
Health Equity	Family and Child Well-Being and Quality of Life	Access to Services	Financing of Services
	✓		✓

Last Updated

07/16/2024

Source

American Academy of Pediatrics